My post today is dedicated to Layla Grace...a two year old fighting neuroblastoma (a rare type of cancer typically diagnosed in children). A friend of mine posted her site on Facebook and I checked it out and just balled - I mean, I balled hard for like an hour. Her mother is blogging her journey and her last post just really hit home (Feb. 16th post).
Check out her site by going to http://laylagrace.org and read about this little warriors amazing strength. I COULD NOT imagine what this family has had to endure. It sounds like hospice is now involved and it's all about comfort care for this sweet little girl who will possibly lose this battle. My thoughts and heartfelt prayers are with them right now and everyday.
Today's Daily Affirmation:
"Don’t you be afraid, for I am with you. Don’t be dismayed, for I am your God. I will strengthen you. Yes, I will help you. Yes, I will uphold you with the right hand of my righteousness." -Isaiah 41:10
God bless your sweet little soul Layla.
Night -
Rachelle
Sunday, February 21, 2010
Monday, February 15, 2010
Doing much better!!!
Hi everyone -
I know I was going to write after my two week follow-up but I kind of got bummed after my appointment because I thought I would know that Cyberknife worked after my three month MRI f/u but now it appears that it won't be until 9 MONTHS down the road! :(
At the 3 month MRI post-treatment, the doctor said that he wouldn't be surprised if the tumor was larger (from the swelling from radiation). 6 months AFTER that MRI, then they should 'hopefully' see that the tumor actually shrunk. It seems like such a long time to wait for 'confirmation' of the darn thing being dead but since I have no control over it, I guess I shouldn't dwell on it!!!
Feeling so much better. That extra week I took off of work was much needed. Although I started to feel better, I went for a short walk one day and then felt like someone had beat me that afternoon! I guess I am really 'not' up to par yet but that's o.k...one day at a time.
Tomorrow I return back to work. Looking forward to some 'normalcy' again. It's amazing how when you stay home (when you are used to working) how you quickly get used to being in PJ's all day! I certainly wasn't motivated the first few weeks to do anything but now I am ready to get back into things. I have a huge, high profile case going to trial in about a month so it's time to get back and get ready for that! It will be nice to see some of my friends at work tomorrow. :)
Today's Daily Affirmation:
"I am a being of light. Angels are all around me, helping and guiding me at all times. I am safe and I am loved. Everything in my life happens at just the right time, in just the right place and in the best way for my highest good. And so it is." - random daily affirmation
Have a great week everyone!
Hugs -
Rachelle
I know I was going to write after my two week follow-up but I kind of got bummed after my appointment because I thought I would know that Cyberknife worked after my three month MRI f/u but now it appears that it won't be until 9 MONTHS down the road! :(
At the 3 month MRI post-treatment, the doctor said that he wouldn't be surprised if the tumor was larger (from the swelling from radiation). 6 months AFTER that MRI, then they should 'hopefully' see that the tumor actually shrunk. It seems like such a long time to wait for 'confirmation' of the darn thing being dead but since I have no control over it, I guess I shouldn't dwell on it!!!
Feeling so much better. That extra week I took off of work was much needed. Although I started to feel better, I went for a short walk one day and then felt like someone had beat me that afternoon! I guess I am really 'not' up to par yet but that's o.k...one day at a time.
Tomorrow I return back to work. Looking forward to some 'normalcy' again. It's amazing how when you stay home (when you are used to working) how you quickly get used to being in PJ's all day! I certainly wasn't motivated the first few weeks to do anything but now I am ready to get back into things. I have a huge, high profile case going to trial in about a month so it's time to get back and get ready for that! It will be nice to see some of my friends at work tomorrow. :)
Today's Daily Affirmation:
"I am a being of light. Angels are all around me, helping and guiding me at all times. I am safe and I am loved. Everything in my life happens at just the right time, in just the right place and in the best way for my highest good. And so it is." - random daily affirmation
Have a great week everyone!
Hugs -
Rachelle
Thursday, February 4, 2010
Back again! :)
Hi everyone!
Sorry I haven't written in awhile but I have been tired (obvious) and I just kind of got in a 'funk.' Didn't really feel like writing and I was just feeling like I was in a 'fog' for the last few weeks.
I would say that today is the first day my head really felt somewhat 'clear.' Still having some random side effects and some fatigue (like the other morning I woke and felt so nauseas like I was going to puke! Almost like I felt when I got pregnant and then after about 20 min. it went away). It's mostly annoying but I just tell myself that ALL of this is 'temporary' - right? Could be worse! I am worried about the ringing in my ear - really hard to go to sleep at night when it's quiet and the ringing is more prominent. Tomorrow is my 2 week f/u post treatments so I am going to be picking the doctors brain with my questions!!! :)
All in all - I am hoping next week I will be on the 'upswing' and feeling back to 'normal.' I am looking forward to getting some normalcy back to my life. I saw Dr. Won yesterday - ALWAYS good to see my Korean doctor! He is awesome and so inspiring. He said he feels my body tolerated the treatments "very well." Smile.
Today's Daily Affirmation:
"You gain strength, courage and confidence by every experience in which you really stop to look fear in the face." ~ Eleanor Roosevelt
Remember me talking about the 'light at the end of my tunnel getting bigger and bigger?' Well, it certainly has! I will finally feel like I can walk through it when I get that MRI in 2-3 months. Nothing but good, positive thoughts and keeping my faith strong to get there. All is well, life is good.
Good night! :)
Rachelle
Sorry I haven't written in awhile but I have been tired (obvious) and I just kind of got in a 'funk.' Didn't really feel like writing and I was just feeling like I was in a 'fog' for the last few weeks.
I would say that today is the first day my head really felt somewhat 'clear.' Still having some random side effects and some fatigue (like the other morning I woke and felt so nauseas like I was going to puke! Almost like I felt when I got pregnant and then after about 20 min. it went away). It's mostly annoying but I just tell myself that ALL of this is 'temporary' - right? Could be worse! I am worried about the ringing in my ear - really hard to go to sleep at night when it's quiet and the ringing is more prominent. Tomorrow is my 2 week f/u post treatments so I am going to be picking the doctors brain with my questions!!! :)
All in all - I am hoping next week I will be on the 'upswing' and feeling back to 'normal.' I am looking forward to getting some normalcy back to my life. I saw Dr. Won yesterday - ALWAYS good to see my Korean doctor! He is awesome and so inspiring. He said he feels my body tolerated the treatments "very well." Smile.
Today's Daily Affirmation:
"You gain strength, courage and confidence by every experience in which you really stop to look fear in the face." ~ Eleanor Roosevelt
Remember me talking about the 'light at the end of my tunnel getting bigger and bigger?' Well, it certainly has! I will finally feel like I can walk through it when I get that MRI in 2-3 months. Nothing but good, positive thoughts and keeping my faith strong to get there. All is well, life is good.
Good night! :)
Rachelle
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