Wednesday, April 21, 2010

MRI in a few weeks!

Mean people suck....not going into details but I really feel sorry for people who have nothing better to do with their time or their mind!

Now - on to more important things! :) My MRI is scheduled to come up in the next few weeks. Am I nervous - yes. I know they said the tumor would be bigger but I am worried about 'how much' bigger. I took Monday off of work because the ringing in my ear seems to be getting worse? I have no idea what's going on. Maybe it's the tumor swelling which is causing more pressure and more ringing? Who knows. I can spend hours and hours 'wondering' and hopefully very little time thinking the worse but in the next few weeks I will deal with it then, right??

Made an appointment with my ENT doctor. I have a few questions for him regarding the ringing, my hearing (ear feels more plugged - could be from the swelling) and how to express my salivary glands. A friend of mine had that awful metal taste in her mouth after radiation and she said her ENT told her how to express her glands to get that crap out. I tried it a few times but don't know if I am doing it right. I, of course, couldn't get in to an appt soon (approval, then it takes weeks) but I am hoping to get in sooner with a cancellation. Remember the posts back of "Hi there..it's Rachelle from San Diego - remember me?" ..........well, here we go again! (smile)

Tomorrow Chris and I are meeting my fabulous attorney (who helped me with my appeal) to thank him and give him a small token of our appreciation (although, if I was rich, I would certainly pay him EVERY penny he earned and more). I know attorneys get a bad rap in California but there are a handful of really descent ones who have good hearts and thank God I was lead to an amazing human being! I will forever be grateful to you Greg!

On another note - remember when I won my appeal and I said that my next mission (after treatment) would be to have my insurance co. change their policy? Well, I haven't forgotten about that. I am going to contact Sharp and make an appt. with their adminstrators (particularly the one who denied me over and over) and then possibly have my 'patient liason' contact person with Cyberknife meet too. I can't wait.

Did I tell you I called that adminstrator (the one who denied me) and said, "This is (my name)...remember me?" And she said, "Oh yes" and was SO NICE to me on the phone? Go figure! Anyway, I had to ask her a question and she was probably glad to get off the phone with me but I'll be calling her again soon. SURPRISE! :)

Just when things seem to kind of 'settle', the roller coaster is now starting to slowly ascend another mountain. That's o.k. - I have handled worse and the worst is over.................right?

Today's Daily Affirmation:
When you have come to the edge of all light that you know And are about to drop off into the darkness Of the unknown, Faith is knowing One of two things will happen: There will be something solid to stand on or You will be taught to fly - Patrick Overton

How did I miss this quote? It's amazing!!

Have a great Thursday everyone! Start your morning with, "something good is going to happen to me today" and guess what, something good WILL happen!!

Night -
Rachelle


Monday, April 5, 2010

Sick, again???!!!

I think I am coming down w/something...again! :(
I have had about 5 colds since treatment. I don't feel strong and it seems like I just catch anything and everything. Today I started having that 'scratchy' feeling in my throat and tonight it feels worse. I am doing o.k and go about my 'daily' stuff but I don't FEEL strong or healthy. My ear is still ringing (they were hoping this would go away at 2 months and I am going on month 3), I get weird sensations on the right side of my face, I have that AWFUL metal taste in my mouth and I still get bouts of nausea. I had some bloodwork done last week and my iron is low. I guess that can explain me feeling like I am just 'dragging' lately but I am sure I still need to give it time. It hasn't been that long AND my tumor is supposed to swell post radiation so I am sure I am going to feel symptoms from that. This morning I woke up and couldn't hear out of my right ear......it took about 10 minutes trying to pop my right ear and it finally cleared. Freaked me out for those 10 minutes but then it was o.k.

So, should I complain more? Smile. Really, I can't complain.....all these things are just more of a pain than anything. Can I live with it? Of course. Will they go away? Hopefully. And if they don't, I'll get over it. Things could be worse.

Life is crazy busy. Trying to balance work & family is hard. I don't know how people do it with more than two kids! Egads!

Chris and I just had our b-days and he got me tickets to the Black Eyed Peas. My FAVORITE song ("I gotta feeling") was the last song they sang. It was a great concert but of course, I was exhausted and all that noise made the ringing in my ear 100 times worse. It finally calmed down after a few days - it was worth it. :) Thanks hubby for the tickets!

Not much else to write....kind of a boring entry but I just wanted to let you all know I am still here and just waiting for my MRI in about 3 weeks! This last weekend was nice.....I love Easter and on Sunday, me and the babies went to church (Chris had to work). It was a really nice service. Made me really think about my relationship with God and that I have a lot more work to do in 'that area.' Music was nice and about 30 people accepted Christ into their life. It was pretty cool.

Today's Daily Affirmation:
"The road of life twists and turns and no two directions are ever the same. Yet our lessons come from the journey, not the destination."- Don Williams Jr.

So true. It's the journey that shapes us and makes us who we are.

Hope everyone had a great Easter weekend! :)
Night!