Well, I started a blog. I have always been one to journal at times and I thought this would be the best way to keep my family and friends informed on my journey! So, my blog title is 'All is well' , as in "All is well in my world today" (taken from Louis Hays 'daily affirmation' on her website). If I look at the big picture, I have SO much to be grateful for, and for some reason God chose me to go through this. I have had many 'things' come full circle on this journey and I am surprised to hear myself say this but if I could turn back time, I wouldn't change a thing.
As most of you know - I have been diagnosed with a facial nerve schwannoma. Basically, a tumor growing into my brain and ear canal - and it has to go! It has been almost 9 months since my diagnosis. Because it has grown 45% in 7 months, it is time to decide what type of treatment to do so that I can try and prevent permanent, irreversible damage.
I am feeling closer to a decision (which will most likely be radiation) but I am flying up to Stanford on Monday to get three more opinions (from the "best" around). Most of you that know me well, know that I will research something like crazy (thank God for the internet!!) until I feel like I have all my answers.
As far as the radiation treatments go, it's just now trying to figure out 'which one' to do and 'which one' is best for my situation. It can still cause damage to my nerves and yes, the side effects are one thing I am NOT looking forward too but my situation still is nothing compared to others I know that are dealing with a lot worse.
If there is one thing you can take away from my illness, it's that if you 'know' or have a 'gut feeling' that something might be medically wrong with you - then push your doctor for answers!! "I" asked for the MRI - the 'specialty' doctor wanted to send me to physical therapy. I said, 'nuh-uh' - I knew something was wrong. Had I never gotten one, I would almost likely be deaf and/or with permanent, right-sided facial damage. Yes, I know I can be bossy or pushy at times but it has obvious helped me with my situation. Don't be afraid to tell your doctor what to do - remember 'you' are your own advocate!
I'll try and post something each day. I appreciate all your support, prayers and love. PLEASE feel free to post a comment, daily affirmation or anything! I need some positive energy my way and you all have helped me make it through my 'many' journeys so far.
LOVE TO YOU ALL! :)
Rachelle
I'm right there for ya! Anything, anywhere, anytime. Love Ya! Ronn
ReplyDeleteHey sweetie, I am sending positive vibes your way!! You are an incredible and strong woman, I know you will be well. All my love, Maria
ReplyDelete