Yesterday and Today..

OK - I missed writing yesterday because I was so tired. This week has been exhausting to say the least. I will try to journal daily but with all that’s going on, I may miss a day or two. When I start having treatments, I will try and get Chris or someone else to keep you all updated.

Update from yesterday!!!

I met with my primary physician yesterday. You are awesome Dr. Lynne Champagne!! We discussed my recent trip to Stanford and she agreed with me going to Stanford and getting treated there. She said she was going to call the referral 'place' directly to try and get a feeling if they would go one way or another. It’s so nice to have a doctor who ‘listens’ to the patient (don’t get me wrong, I have done my homework) but she has been very pro-active with my situation! I have been with her for 10 years and she has been the best! Thanks so much Dr. Champagne for really helping me when I need it the most!!!

I talked to a couple of people up at Stanford to try and get them to send me some ‘series’ from Doctor #2 (ie: documents, stats, papers) on my condition, the rarity and why I need Stanford to treat me (I hope you all are listening to what I am doing in case you need it – hopefully not but I have learned a lot with Chris’ accident and now my condition). You CAN get the best healthcare – you might just need to work at it a little. This will help my doctor and myself in case I need to appeal. I am getting prepared, ‘just in case.’

So, all that took place yesterday.

As for today!!!

Back to work. I took Mon – Wed off because I have had too much to do to get things going with my situation. I have actually taken quite a bit of time off (off and on) for the last three years (2 babies, Chris’ near-fatal accident and now my situation). I am grateful for my supervisor, lab manager and co-workers who have supported me and have not given me crap. SDPD Crime Lab rocks – love you guys!

Got a call from my primary doctor. She called in to see if my insurance would even 'entertain' the idea of approving it and they said no. She also said they would probably deny my appeal (because my insurance offers radiation and HAVE treated my condition before). The problem is, they haven't treated it a lot! The doctor I spoke to - only a couple times. I don't feel comfortable putting my situation in the hands of someone who has dealt w/my 'rare' tumor, a couple of times - end of story. My primary physican was upfront and I appreciated that, I think she too understands what 'position' I am in - a crappy one. She also pretty much said that if she was in my shoes, she would probably want the same thing. I asked her to put in the referral (to have it on paper) and even if it gets denied, I'll appeal it. I want to go to Stanford so I am going to find a way to get there. This part of this WHOLE thing sucks the most - really. I had a few meltdowns but I am over it and ready to get 'my way.' :)

After work, time with the babies, hubby is at the FD (Fire Dept.) today and then off to the Britney Spears concert! NO – I am not really a fan but my neighbor had free tickets and offered one to me and some other friends/neighbors on my street. I could use a ‘girls night out!’ I guess it’ll be fun to say, “been there done that!” Thanks Christina!!

...........Just got back from the concert (it's almost midnight) and it was actually fun. The entertainment was good, she has awesome dancers and it has inspired me to take a 'hip/hop' class (why not??!!). Just because I am 38 doesn't mean I can't dance like that!! :) OK - maybe not like them but I can try. I have always wanted to so why wait any longer!

Today’s Daily Affirmation:

BE AWARE OF YOUR IMMORTAL SELF:

“Let go of the idea that you’re a body that’s destined to die, and instead seek an awareness of your immortal self. Affirm: I am eternal, and that means I showed up here from the infinitude of spiritual intention to fulfill a destiny that I must act on.” (Dr. Wayne Dyer)

I am DEFINITELY acting on my situation!! It amazes me how ‘events’ can come up in your life and really change the person you are. I am already different from just a few months back and I look forward to the person I will be after this is all done.

Hugs to you all!!

Rachelle