So, I called the source itself. A lady answered and I explained to her a little of my situation and she said immediately, "Oh, you need to speak to Catherine." So, I was transferred to Ms. Catherine, told her my situation and she started telling me ALL the things I needed to hear! She was TRULY a bright spot in my day!!! I feel like I hit the lottery after talking to her - seriously.
She was telling me stuff to put in my appeal, she asked to get Sharp's policy plan so that she could see what it said, she said she was going to do some research for me for any clinical studies or data that could help make my appeal stronger, etc......
Oh my gosh??!! Are you kidding me? I needed to talk to her like weeks ago and I don't know why I didn't contact them earlier but I really thought I would get info from the doctors offices. Note to self: Go to the source directly next time!!! Makes sense now, they have to have sales reps, etc....who try to convince people to get Cyberknife over the other types of radiation machines and that is exactly the info I need! We must have talked for like 45 minutes and she shared with me some stories of other patients who have had hard times. She also stated that there is an office in San Diego and the physician there has done like over 300 intracranial Cyberknife treatments - that's good to know. Some people might not understand but whether I go to San Diego's office or Stanford, it costs the same because it's 'out of network' for Sharp. Of course, I would have to pay for travel to Stanford but if I do get it approved, wouldn't you want the 'best' working on your head/brain?? Like I said before, if I had a 'common' tumor, it wouldn't matter but when you are dealing with mine (which consists of 1% of all brain tumors), it makes you want to be a little pickier in who is treating you (and rightfully so).
I just felt SO MUCH better after talking to her. Now, if you have read all my postings, you know that I have felt like this with others - and they didn't pan out. So, keep your fingers crossed. I really do think she will be able to help me. YEA!
Today's Daily Affirmation:
"All is well, and you will never get it done. Life is supposed to be fun. No one is taking score of any kind, and if you will stop taking score so much, you will feel a whole lot better --and as you feel a whole lot better, more of the things that you want right now will flow to you. You will never be in a place where all of the things that you are wanting will be satisfied right now, or then you could be complete--and you never can be. This incomplete place that you stand is the best place that you could be. You are right on track, right on schedule. Everything is unfolding perfectly. All is really well. Have fun. Have fun. Have fun!" - Abraham (of Abraham and Hicks)
I had to read this over like three times but I get it. It completely makes sense to me. I am on track and on schedule. It might not be in the time frame I want it to be but for some reason this is the way it has to be - and I accept that.
Have a GREAT Tuesday!!!
Hugs -
Rachelle
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