After I worked all day, I got on the horn (phone) and made my 'usual' round of calls. Stanford actually called me (yea!) and gave me the doctors email so that I can request any literature/data, etc.. that I need for my appeal. I also sent a fax to my primary physician to see if she could set up a 'peer to peer' call w/the Stanford doctor and a physician in the appeals office. I don't know if this will EVER happen but the Stanford doctor is more than willing to give his stance on my situation, but they need to call him (his nurse explained to me why and it makes sense but just makes things harder for me). So, I did my part now it's................you know....................the waiting!!!!!!!
I am working on my appeal - that seems to get harder and harder each day. I keep changing it so tomorrow I am going to go over it, AGAIN, and just stick to the facts! I have to take the emotional part out of it because really, they don't care about that. They only care about things that could bite them in the butt later, so I have to stay focused on the facts. One of my AWESOME 'followers' is going to look it over for me because he is AWESOME at writing things like this (thanks Ronn!!!) :) Then after that, off to the attorney before I send it in.
My little man is SO much better!! He finally slept through the night last night without waking! Some people ask me how I keep plugging away at this and stay strong and I will tell you that A LOT has to do with sleep. When my kids are NOT sick, they are the best sleepers. If my little Camryn wasn't sleeping the way she was from early on (12hrs/night at 12 weeks), I KNOW I would be handling ALL of this quite differently!!! Austin has always been a good sleeper too - all because of the '3 Day Sleep Solution!' Davis Erhler's program ROCKS!! After my husband's near-fatal accident, I called Davis to help me get Austin on a good sleeping/napping schedule. I really needed help because not only did I have a newborn, but a very sick husband.
She changed my life. Austin was 9 weeks when Chris had his head injury and after the first night I talked to her, he was sleeping 10hrs - then 12... I could not believe it. So, I handled that tragic time MUCH better because "I" was able to sleep and get some rest. Same with my situation now. I found out about my brain tumor when Camryn was 11 weeks old - and she was sleeping almost 12 hrs/night. It made the BIGGEST difference! I don't know where I would be had I not found Davis (thanks Kim)!!! You really are the best and I vote YOU for President! :) You can check out her website on my 'favorites' list (right side of my blog). Can't wait to see you Sunday! :)
Tomorrow I am home with the babies. Mom is out of town and no one to watch them all day. It'll be fun to just hang out at home and snuggle in this cool weather! I LOVE Fall!!! :)
Today's Daily Affirmation:
"Today, I choose to focus on Life's small gifts,
a touch, a smile, a fragrance.
Today, I choose the Good that Life has to offer." - Laura Dolson
Many lessons learned through all this!!! I am a better person for it, I am more grateful for the small gifts in my life and I look forward for all that is to come.
Have a great night and SLEEP WELL!!!!! :)
Rachelle
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