Tuesday, January 5, 2010

The light at the end of the tunnel is getting bigger!!!

Sorry I haven't posted in the last few days...been busy with so many 'little' things!

Anyway, here is the most recent update!! I forgot to tell all of you that I went and saw the neurosurgeon that I really like in San Diego last week for his 'advice' on where to get treatment. I already posted earlier that I saw the oncology/radiation doctor here in San Diego that does Cyberknife and I really liked him. So, I just wanted to talk to the neuro-doc again because this decision is really important to me. Obviously because I want a really good doctor treating my head!

We discussed Stanford and San Diego and I wanted to have a back-up plan to have a doctor that I feel comfortable with treating me here in San Diego 'just in case' Sharp didn't approve Stanford. Well, they didn't. They approved the Cyberknife treatment in San Diego only and with the oncology/rad. doctor I saw. And I am o.k. with that.......ONLY because he was trained by the doctor I consulted with up at Stanford AND I felt really comfortable with him when I consulted with him AND he has done hundreds of intracranial radiation treatments (really important). Now, my neuro-doc and this San Diego Cyberknife doc work as a team. The neuro-doc gets the MRI/CT and he maps out the really important areas of the brain to stay away from. Then the oncology/rad doc will work with the physicists who 'map out' where my radiation will take place in my head. The whole thing is pretty fascinating. And the ACCURACY of Cyberknife is even MORE fascinating. I KNOW that this is the best treatment for my brain tumor.

I was ALWAYS shooting for Stanford - and my appeal was too but. I will tell you that if I didn't feel comfortable with the doctor here, I would go back and fight some more. It's my fricking head so I do not take that lightly - at all.

So, last I posted was that if I didn't hear from them Monday, I would call them Tuesday (to schedule an appt.)....
They DID call me yesterday (but I got the message after they had already left), so I left a message and sure enough, the 'scheduler 'called me at 8:30 this morning (I already like them!!) :)

As of right now, I have blood labs tomorrow, CTScan and face mask fitting on Friday, MRI on Monday and 'tentative' Cyberknife on the 20, 21 & 22. I will have 3 sessions at 45min/each. Can you believe that? I feel like I am getting the red carpet treatment!! It's all working out as I imagined! :) The hard part is over and now the light at the end of the tunnel is getting bigger and bigger!

I am trying, really trying hard NOT to worry about the radiation treatments - TO MY HEAD! I am getting the best treatment out there so that is good and the alternative is worse so I have no choice. I have been pushing and pushing for this but now the 'reality' has set in that I am getting it - AND SOON! Egads!! So, I guess this is good - not much time to 'think' about it! Before I know it, the 20th will be here!

I am SOOOOOOOOOO ready for this to be done!! My goal was to get this done by the end of 2009........so I came pretty damn close!! (smile) :)

Today's Daily Affirmation:

“Fear can keep us up all night long, but faith makes one fine pillow" - Unknown author

I have always been told by so many people that if you are worrying, you aren't trusting your faith in God. It's so true BUT that is much easier said than done! I do have to say that as I get older, the worrying does become less and less and through this journey, I have really learned to focus on the 'positive' things and NOT what I have NO control over. It's been really hard sometimes but when you can get past that 'feeling', you just feel so much better!!

I hope 2010 has been as good to you, so far, as it has been to me!!!

Blessings to you all!! NIGHT! :)
Rachelle

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